Reagan’s Hope A Cure for Sanfilippo Foundation
What is your organization’s mission statement?
Our mission is to raise awareness and funds for Sanfilippo research that will lead to a cure and to instill and sustain hope for families impacted by this disease.
What population do you serve?
We serve families and children with Sanfilippo Syndrome, which is a very rare and terminal genetic disease affecting 1 in 70,000 births.
How many do you serve in a year?
By funding research to find a cure, we are contributing to an effort that can benefit all families that are dealing with this disease.